Pilates, ALS, and the RDC Marathon…Guest Post by Andrea Lytle Peet

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Andrea Peet (pre-ALS) with her husband

When I was diagnosed with ALS in May 2014 at the age of 33, my husband and I
were confronted by the same depressing facts that everyone with ALS learns:

  • The average life expectancy is 2-5 years
  • Before death, the person will become paralyzed, unable to talk, eat, or
    swallow, and eventually lose the ability to breathe
  • There is no treatment and no cure. The only approved drug extends life
    expectancy 2-3 MONTHS (*note: A second drug was approved in 2017, but it has issues that I won’t bother going into…)

So what do you do with that? I was young, an athlete (I’d done a half Ironman 8
months earlier), and we had just bought a house in order to start a family.
I was already walking with a cane and my speech was slurred, but I thought I was still strong enough to pull off a super sprint triathlon, Ramblin’ Rose Chapel Hill. Since I could no longer balance on two wheels, we bought a recumbent trike. I asked my friends to support me by donating to ALS research and they raised $10,000! My best friend, Julie, and I came in last and ended up with a story in Endurance
magazine.

That race transformed my perspective on the disease. I realized I could inspire
people to take on challenging races as a way to raise money for ALS – but more importantly, as a way to appreciate what their bodies can do. “Team Drea” started with 30 people, but has now grown to 150+ and raised $220,000 for ALS research. As for me, I kept riding my trike…and did a half marathon…then a marathon. Then I thought, “I’m tired of waiting around for this disease to kill me,” and signed up for 12 races in 2016 (half marathons, marathons, and triathlons), each dedicated to someone with ALS who has inspired me.

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Triking

I completed that challenge, crediting my success to exercise on the trike, swimming, and the dumb luck to have a slowly progressing form of ALS.

But it wasn’t until I started working with Mischa Decker at IOBT in January 2017 that I learned I could actually get STRONGER.

What started out as 4 weeks of “I’ll give this a try,” has turned into 11 months of weekly Pilates-based PT appointments with Mischa where we work on my weak areas: core, glutes, outer thighs – and stretching places that are tight: inner thighs, calves, and feet. Top it off with bi-weekly acupuncture appointments with Austin and ooooh weeeee honey, my body feels awesome these days!! 🙂

Mischa is amazing. She is laser focused throughout our session on my positioning, which muscles should be activated, sensitive areas, and those that need attention. I know I’m in trouble when she says, “I have a crazy idea…” because that means she knows I’ve built up the strength to push just a little bit further, do just a little bit more. Which, as we all know, is where the Pilates magic happens.

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On the CoreAlign during one of her Pilates sessions at InsideOut

The results have been incredible. I walk better (still with a walker, but who cares? I’M. STILL. WALKING). While I still fall occasionally, it’s not nearly as frequent now, thanks to my stronger core muscles. And I’m actually getting faster with swimming and triking. Such positive progress is almost unheard of in ALS.

This Sunday, November 12th, I will take on my 12th race of 2017 (27th with ALS) – the inaugural RDC Marathon in Durham. This race benefits my foundation and the proceeds will go to ALS research at Duke. My world-renown* neurologist, Dr.Richard Bedlack, is studying off-label treatments: supplements, bee pollen, fecal transplants, and other crazy things people with ALS try on their own in the absence of any effective treatment in mainstream medicine.

*His wardrobe is also world-renown, see for yourself

He is also studying cases of ALS reversal – that’s right, people whose ALS have gone away. So far he’s found 34…out of 30,000 people living with ALS in the U.S. at any one time.

Not good odds, but Dr. Bedlack’s research gives me hope in the same way that sessions with Mischa do. If I can just hang on a little longer, push just a little bit further, maybe there will be a treatment. Or my body will figure out how to repair itself.

Hey, stranger things have happened – ask the 34 people with ALS reversals…or the woman in the trike doing her 27th race.

Thank you IOBT for supporting ALS research. It means the world to me and everyone else with ALS!

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Team Drea at the Ramblin’ Rose Triathlon 2017

 

 

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The “F” Words: Guest post by Lori Ginsberg, PT

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How can I “fix” my aches and pains? What can I do to avoid activities that cause these aches and pains? WHY am I plagued with these problems over and over again?! I had this issue years ago and it is BACK again…why?!

I get asked these types of questions on a regular basis and the answer is simple. The F words.  FIX, FOUNDATION and FUN. Three words that can change the way you approach fitness and function (more F words!) and avoid the chronic injury/re-injury cycle. Knowing how to balance your time among these three exercise stages will go a long way toward keeping you fit, strong and injury free.

FIX activities are appropriate when injury or dysfunction exists that causes pain and/or abnormal movement patterns. This stage focuses on restoring the most basic movement foundations, protecting the affected structures from further aggravation and allowing healing to take place.   This stage is best managed by experienced physical therapists or other highly trained and licensed movement specialists.

FOUNDATION activities continue to build on the fundamental movement patterns introduced during FIX (or are where to start if no injury exists). These activities focus on making conscious neuromuscular connections to fine tune and improve quality in movement patterns. When such activities are practiced regularly and in good form, the foundations become automatic and the body “upgrades” itself. A good example is the improved posture that results over time from practicing Pilates. Where at first holding yourself tall and straight felt unnatural, now slouching and rounding your shoulders is uncomfortable. It’s now easier to maintain your OPTIMAL alignment!

FUN activities range from CrossFit to gardening, playing beach volleyball to daily long walks with the dog. To perform FUN stage activities, without risking a return to FIX, it’s important to have an adequate FOUNDATION. You wouldn’t build a tree house on a tree with no roots and a flimsy trunk. Neither should you kick a soccer ball or swing a golf club without a strong foundation (aka “core”).

A solid, lifetime exercise program should include regular activities from both the FOUNDATION and FUN categories.

The result…better posture, increased awareness and connection to your body, and improved performance in all levels of activity… from climbing the stairs to reaching a new PR in a triathlon….and less visits to the FIX stage.

The Core Align is the newest tool here at IOBT and is an ideal one for moving through all of these stages. The exercises are fun, functional and challenge the neuromuscular system to perform at its optimal level. Check it out, along with our other Pilates equipment and floor classes at InsideOut Body Therapies.

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http://www.insideoutbodytherapies.com

To schedule a CoreAlign or Pilates private or register for classes at InsideOut, contact the studio. 919-361-0104  info@insideoutbodytherapies.com

Real Men Do Pilates

It happened at an event just a week ago.  I was talking with a gentleman about our studio and he seemed very interested, but said:

            I would feel uncomfortable coming into a studio and doing Pilates with a bunch of women.   It’s not for men.

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Baseball: MLB Season Preview: Portrait of Chicago Cubs pitcher Jake Arrieta demonstrating Pilates workout on Reformer equipment during spring training photo shoot at Sloan Park. Mesa, AZ 2/27/2016 CREDIT: Robert Beck (Photo by Robert Beck /Sports Illustrated/Getty Images) (Set Number: SI-215 TK1 )

More and more athletes are using Pilates as a supplement to their training program.  Chicago Cubs pitcher, Jake Arrieta, recently talked to Sports Illustrated about his use of Pilates. “What I noticed from Pilates last year was that I have much better control of my body,” Arrieta says. “I repeat my delivery consistently. My balance is much improved. And the mental and physical toughness Pilates requires to complete movements the correct way have directly helped me on the mound.”  He reportedly gets on the reformer for about 20 minutes before every game.  (See the full article here)

And he is not the only one.

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Tennis legend, Andy Murray used Pilates to recover from back surgery in 2013. (WSJ)

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Kobe Bryant

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Antonio Brown

And it’s not just for athletes.

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Chef Ryan Pera uses Pilates to help keep his back strong for long shifts standing on his feet in his popular Houston restaurants. (Check out the article here)

And if you still aren’t convinced, check out these pics!

Let’s also remember that Pilates was….wait for it….a GUY!

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Pilates (originally called Contrology) was named after Joseph Pilates, a boxer and gymnast from Germany who was an inventor and physical fitness expert.  He developed this system of exercise, along with all of the Pilates equipment, and was a pioneer of the health and fitness industry.   He encouraged and taught people how to move and be healthy so that they could go out and enjoy their lives!

So if you want to

  1. Build Strength
  2. Improve Flexibility
  3. Cross Train
  4. Prevent Injury
  5. Discover New Muscles
  6. Build Core Strength
  7. Decrease Stress
  8. Improve Posture
  9. Increase Body Awareness

you might want to join the ladies and take up Pilates!

Follow us on Facebook and Instagram to see what our male clients are doing in the studio and what they have to say about why they choose Pilates.

#RealMenDoPilates #brolates #DudesDoDoPilates